Steve Boryszczuk held his beautiful wife’s hand for eight days and nights as she lost her long battle with Alzheimer’s Disease aged just 44.
Michelle Boryszczuk, one of Britain’s youngest Alzheimer’s victims, has died surrounded by her husband and sons after a five-year fight with the debilitating disease.
Over the past two years the Rasen Mail has reported on Steve’s incredible fundraising efforts and Michelle’s remarkable courage and dignity.
Steve, who is from Wickenby, has paid a moving tribute to his childhood sweetheart - and shared some family pictures from Michelle’s last week that she wanted the world to see.
He told the Rasen Mail: “She wanted people to see her right up to the day she died - to show how Alzheimer’s affects people.
“She was an absolutely beautiful, fascinating young lady whose life was tragically taken away so young.
“I’m absolutely distraught and will miss her for the rest of my life. She was my world. She lived her life to the full, crammed as much in as she could.
“In the last five years I’ve spent every single day with her, I never gave up. I’ll miss her so much.
“I held her hand for the last eight days - I never went home or went to sleep. I was frightened she was going to die when I wasn’t there.
“She knew I was there. In the last couple of days every time I let go of her hand her head and arms started going.
“When I held her hand, she calmed down again.”
Last year, Steve discovered Michelle’s secret diary hidden in the airing cupboard at their home. The diary contained detailed instructions for Steve about how she wanted to be cared for.
Steve said: “She was such a strong-willed woman. I carried out everything she wanted to the letter.
“She’d be so, so proud of me to be honest. She’d be over the moon I’ve carried it out.
“She didn’t want any pills or pain relief to keep her alive. It shows what a strong person she was.
“She knew what she wanted, she knew it was going to happen. It was so, so hard.
“I could have gone against her will and given her antibiotics but I didn’t.”
Two weeks before she died at her care home in Louth at 6.10am on Wednesday, May 8, Michelle lost her ability to swallow. The Friday before Michelle died she had a stroke and then caught pneumonia a few days later.
Steve has already raised more than £12,000 for the Alzheimer’s Society after a charity trek along the Great Wall of China. Now, he and his two sons Richard and Graham are doing the Yorkshire Three Peaks Challenge in memory of Michelle on July 28.
To make a donation visit justgiving.com/steve-boryszczuk
Michelle’s funeral takes place at Lincoln Crematorium on Wednesday, May 22 at 11.10am.