A TODDLER who was born with a mystery illness that baffled Britain’s best doctors has died suddenly.
Brave two-year-old Jack Huskisson saw 27 specialists from all fields of medicine, but no-one could work out what was making him ill.
Jack’s mystery condition left him with an enlarged liver and spleen, a hole in the wall that separated the right and left ventricles of his heart, visual problems, development delays, abnormally low muscle tone and no reflexes.
The toddler – who did not sit up until he was two – had to have daily injections and antibiotics to support his bone marrow and physiotherapy four times a day.
Consultants as far away as Holland could not work out what was making Jack unwell and when he died the post-mortem examination was inconclusive.
Grandparents Vanessa and Stu Proctor, who live in Market Rasen’s Coronation Road, say they are devastated at Jack’s sudden death.
Vanessa, 54, who is known as Ned, said: “With no immune system he was at risk of everything. We were always very aware we might have to get him to hospital very quickly, but it was a massive shock when he died. There were no signs he was unwell at all and his development was even starting to catch up.
“But his condition was very complicated. He’d been into hospital many times and none of the consultants he saw could work out what was wrong with him – they couldn’t come up with anything that matched.”
His mum Verity Proctor – who grew up in Market Rasen and moved to Boston at 19 to train as a nurse – has set up J.A.C.K.S (Jack About Carers Kids Support) charity to raise money for a Lincolnshire-based retreat for sick children and their carers.
Verity, 33, said: “He had a life that made him a fighter, with all his time in hospital he kept a smile for everyone who was in his life, he was my little star.”
Grandmother Ned said: “We’re a very close family and are all devastated. We loved him very much.
“He was a very special little boy who brought a smile to everyone’s face and was a pleasure to know.
“He was always happy and never miserable about his problems even though he didn’t like people taking his bloods.
“He loved watching football and car racing and was very determined when he didn’t want to do something.”
An Irish music night to raise money for J.A.C.K.S is being held at Market Rasen Social Club on Friday, March 16 from 7.30pm until late.
Tickets cost £5 and include entry into a J.A.C.K.S charity raffle and a jacket potato with a filling. For tickets call 01673 844088.